Purpose
To ensure that the work of HNCIG is informed by, and aligned with, the needs, priorities, and lived experiences of head and neck cancer patients/carers and the wider public.
Scope of Work
- Ensure that research priorities and communications reflect a patient-centred approach.
- Strengthen relevance and quality of outputs by engaging patients/carers in the research life cycle.
- Promote open communication between researchers, clinicians, patients and the public.
- Represent diverse communities and advocate for the inclusion of underserved groups and/or culturally appropriate engagement practices.
- Support policy, advocacy and public awareness in any areas where needed.
Membership
Patient Representatives, Health professionals with PPIE experience or expertise, Patient Advocacy Group representatives.
Leadership & Reporting
Chair appointed by the Board, 3-year term, renewable once by mutual agreement for two years. Reports to HNCIG CEO.
Meetings
At least two per year (virtual/hybrid).
Deliverables
- Annual report on work of the Committee to HNCIG executive and Board.
Review
Reviewed every three years by the Board.
Committee Members